It’s been 3 weeks since my last post and I can only say that this is manly down to the fact my life has got into a daily routine, which means there hasn’t been too much to write about.
So for the last 5 weeks my working week, i.e. Mon-Fri are treatment days and then weekends are rest days to recover. My days all centre around when I administer my cocktail of drugs, which is 3 times a day, usually between 9-10am, 4-6pm and 10-11pm. Sue has been a great nurse since leaving the hospital but now she back at work, I’m doing this myself.
The radiotherapy didn’t really cause any issues for the first 3 weeks, my throat and swallow are still pretty painful and now the skin on my neck is getting redder and my neck seems to be pretty hot most of the time. My main issues I face every day is clearing my throat and mouth of salvia, which often makes me sick or makes me feel nausea especially before the next drugs are due and so I have got a lot better at managing my days with the drugs and creams and getting these in my body at the right times. I am also now started to feel very tired from the radiotherapy and spend a lot of time sleeping or dosing especially as at most I’m only getting a block of 3 hours of sleep at anyone time, this is mainly down to waking up with a very dry mouth and the salvia glands have also been effect by the surgery and now even more by the radiotherapy.
Hopefully this helps you all see whats going on and again we thank you all for your love and support and I have be fortunate that a bunch of friends have organised the lifts to and from the station and one of them has always accompanied me each day to the hospital, which has been great as generally after the radiotherapy I have felt very tired and I was good to know would get you home. Thanks Guys
January 30, 2014
Hi Neil Thank you so much for keeping all your ‘fans’ updated with your latest news. Not long to go until the radiotherapy ends and that you’ll then be able to heal and recover. Looking forward to reading that you are feeling that you are on the mend. Take care and with all best wishes and thoughts L
January 29, 2014
Hi Neil and sue
Just a quick message to say my thoughts are with you both. I pray that you have a quick recovery and that god gives you strength.
I do often think of when we all were at auntie rose’s and the cross stitches we made for you and sue.
My goodness time goes far too quickly… Now I’m a mum with a two year old son! Crazy!
Take care and very best wishes
Lots of Emily xxx
January 29, 2014
So good to read this latest update son, you certainly looked better when we saw you on Sykpe while staying with Claire in Ireland. Just one more week after this to the end of the Radio therapy. You can then just concentrate on to a full recovery.love Mum and Dad.
January 29, 2014
We all know this is no small thing that you and all your family is going through. I know I can say this for all your friends at St Paul’s and especially the ones who have been helping with your daily trips to the hospital, when the road looks difficult, we are here with you for the long haul, but most of all, The Lord is with you.
Dave & Mathilda
January 29, 2014
We are thinking of you Neil as you continue on this difficult journey. You are so far along the road now, and so near the end of the radiotherapy. Then your body can really start to recover in all departments.
You are really blessed to have such wonderful family and friends showing just how much they love and care for you. Take strength from that. If there is anything I can do…please ask. Lots of Love to you and all the family from Anne xxx
January 28, 2014
Hi Neil,
Think its wonderful you have managed your updates. We all lovel hearing from you. The tiredness must be very hard but go with it and take sleep whenever you can to help with recovery. Sending you lots of love XXXX